rare disease – APBN New Site

Urgent Need for Evidence-based Care Catered to Rare Diseases

August 17, 2020 . Inside Industry

Report by Economist Intelligence Unit (EIU) found only one in three rare disease patients receive best-available, evidence-based care. Globally, there are between six to seven thousand known rare...

Database Being Established for Rare Disease Sufferers in Shanghai

January 9, 2019 . Eye on China

Estimated 173,000 people are living with rare diseases in Shanghai. The city has started to set up a database for people with rare diseases in an effort to boost medical care, policy making, drug...